Posted on 26 September 2016
Once in a blue moon a cell in a child’s adrenal will make a bad copy of itself and multiply. They call it Neuroblastoma. That’s what happened to Jonah, to us. We found the cancer on his third birthday. It was painfully ironic that the day he was born three years later would also be the day we found out he could die. We even ordered the same take-out pizza, because we didn’t know what else to do. I couldn’t eat it.
Once there's a blue moon, you meet once-in-a-blue-moon people. The day after our diagnoses, they began trickling into our lives through the door of our hospital room. The doctors, nurses, social workers, psychologists, and child life workers at Children’s Mercy were perfectly pre-packaged. They knew what to do when I had to be convinced to eat. “Treatment is a marathon, not a race,” they said,“you have to take care of yourself."